Executive Director
Clear Cell Sarcoma Foundation
I am the co-founder of the Clear Cell Sarcoma Foundation (CCSF -formerly Sara's Cure) and mom to two girls diagnosed at the age of 17 with 2 different cancer types and no known genetic link. I am a Charleston SC native with a BS from the College of Charleston and born with a strong drive for success. When our family was told there is no treatment and a poor prognosis for CCS patients we refused to accept that. in 2018 after my daughter's CCS returned, and along with the help of our community and good friends, the CCSF was founded. Through research and patient advocacy work I have come to know dozens of CCSF patients and families that have a common goal of sharing their lived experiences with each other for a chance at better and longer living. I, along with the CCS family, helped fund repurposed drug testing and successfully concluded a patient/pharma partnered phase 1 trial of a combination treatment. We continue to guide patients that want to donate tissue for research and recently developed a patient owned HIPPA compliant patient experience survey. I am also the wife of the incredible Denny Woods, father of our two amazing daughters and CCSF co-founder.
