Session 1: Improving Sarcoma Care Globally: Access, Equity, Advocacy, and Policy

Chair(s)

• 

  B Ashleigh Guadagnolo, MD,MPH (she/her/hers)

  Professor
  The University of Texas MD Anderson Cancer Center
  Houston, Texas, United States

Moderator(s)

• 

  Bernd Kasper, MD, PhD (he/him/his)

  Professor
  University of Heidelberg, Mannheim University Medical Center
  Mannheim, Baden-Wurttemberg, Germany

  Slides
• 

  Nadia Hindi, MD, MSc

  Medical Oncologist
  Medical Oncology Department, Hospital Universitario Fundación Jiménez Díaz and Villalba General Hospital, Madrid, Spain; Medical Oncology
  Madrid, Madrid, Spain
• 

  Angela Hong, MBBS, MMed, PhD, FRANZCR

  Prof
  Sydney Medical School, The University of Sydney and Department of Radiation Oncology, Chris O’Brien Lifehouse, Sydney Australia.
  Sydney, New South Wales, Australia

Presentations:

• 9:00 AM – 10:00 AM  

  A GLOBAL TREATMENT ACCESS PROGRAM FOR PATIENTS WITH GASTROINTESTINAL STROMAL TUMOR IN PREDOMINANTLY LOW- AND MIDDLE-INCOME COUNTRIES: A RETROSPECTIVE COHORT ANALYSIS
  

  Author: Michael J. Wagner, MD (he/him/his) – Dana Farber Cancer Institute

  Co-Author: Edward L. Briercheck, MD/PhD (he/him/his) – Dana Farber Cancer Institute

  Co-Author: J. Michael Wrigglesworth, B.A. – The Max Foundation

  Co-Author: Philip Stevenson, M.S. – Fred Hutch Cancer Center

  Co-Author: Alicia A. Annamalay, PhD – The Max Foundation

  Co-Author: David G. Coffey, M.D. – University of Miami

  Co-Author: Aparna Anderson, PhD – The Max Foundation

  Co-Author: Pat Garcia- Gonzalez, M.S. – The Max Foundation
• 9:00 AM – 10:00 AM  

  WHAT IS A SARCOMA "SPECIALIST CENTRE"? ADDRESSING THE NEED FOR CORE PRINCIPLES AND A GLOBALLY ACCEPTABLE DEFINITION
  

  Author: Roger Wilson, CBE HonMD HonLLD (he/him/his) – Sarcoma Patient Advocacy Global Network Assoc. (SPAGN)

  Co-Author: Kathrin Schuster (she/her/hers) – Sarcoma Patient Advocacy Global Network (SPAGN)

  Co-Author: Denise Reinke, MS, NP – University of Michigan

  Co-Author: Gerard Van Oortmerssen, Dr. – Sarcoma Patient Advocacy Global Network Assoc. (SPAGN)

  Co-Author: Ornella Gonzato, Dr. (she/her/hers) – Sarcoma Patient Advocacy Global Network Assoc. (SPAGN)

  Co-Author: Chandrajit P. Raut, MD, MSc, FACS, FSSO (he/him/his) – Brigham and Women’s Hospital/Harvard Medical School

  Co-Author: B Ashleigh Guadagnolo, MD,MPH (she/her/hers) – The University of Texas MD Anderson Cancer Center

  Co-Author: Rick Haas, MD, PhD (he/him/his) – The Netherlands Cancer Institute

  Co-Author: Alice Chen, MD – Division of Cancer Treatment and Diagnosis, National Cancer Institute

  Co-Author: Bernd Kasper, MD, PhD (he/him/his) – University of Heidelberg, Mannheim University Medical Center
• 9:00 AM – 10:00 AM  

  RACIAL AND ETHNIC DISPARITIES IN PRESENTATION AND OUTCOMES OF PATIENTS WITH GASTROINTESTINAL STROMAL TUMORS (GIST) IN THE ERA OF TARGETED THERAPY
  

  Author: Priscila Barreto Coelho, MD – Sylvester Comprehensive Cancer Center

  Co-Author: Natalia Yanchenko, MD (she/her/hers) – Sylvester Comprehensive Cancer Center

  Co-Author: Steven Bialick, DO – Sylvester Comprehensive Cancer Center, University of Miami

  Co-Author: Julie Grossman, MD – Sylvester Comprehensive Cancer Center

  Co-Author: Francesco Alessandrino, MD (he/him/his) – Sylvester Comprehensive Cancer Center

  Co-Author: Aditi Dhir, MD (she/her/hers) – University of Miami Miller School of Medicine

  Co-Author: Emily Jonczak, MD – Sylvester Comprehensive Cancer Center

  Co-Author: Gina Z. D'Amato, MD – Sylvester Comprehensive Cancer Center

  Co-Author: Andrew Rosenberg, MD – Sylvester Comprehensive Cancer Center

  Co-Author: Jonathan Trent, MD, PhD – Sylvester Comprehensive Cancer Center, University of Miami
• 9:00 AM – 10:00 AM  

  THE PATIENT-REPORTED OUTCOMES (PROS) IN SARCOMA INITIATIVE: TOWARDS A GLOBAL COLLABORATIVE MEASUREMENT STRATEGY
  

  Co-Author: Olga Husson, PhD (she/her/hers) – Netherlands Cancer Institute

  Co-Author: William D. Tap, MD – Memorial Sloan Kettering Cancer Center

  Co-Author: Madeline Pe, PhD – European Organisation for Research and Treatment of Cancer (EORTC)

  Co-Author: Dagmara Kulis, MA – European Organisation for Research and Treatment of Cancer (EORTC)

  Co-Author: Bryce B. Reeve, Prof, Dr – Department of Population Health Sciences

  Co-Author: Jay Wunder, M.Sc, MD – University of Toronto

  Co-Author: Mrinal Gounder, MD – Memorial Sloan Kettering Cancer Center

  Co-Author: Anne-Rose W. Schut, MD – Erasmus Medical Center

  Co-Author: Viswatej Avutu, MD (he/him/his) – Memorial Sloan Kettering Cancer Center and the Weill Cornell College of Medicine

  Co-Author: Marie Barnett, PhD (she/her/hers) – Memorial Sloan Kettering Cancer Center

  Co-Author: Martin Eichler, PhD, MSc – National Center for Tumor Diseases (NCT/ UCC), University Hospital Dresden, Technical University Dresden

  Co-Author: Dimosthenis Andreou, MD – Medical University of Graz

  Co-Author: Marta Berndsen, MD (he/him/his) – Sahlgrenska University Hospital

  Co-Author: Gerard Van Oortmerssen, Dr. – Sarcoma Patient Advocacy Global Network Assoc. (SPAGN)

  Co-Author: Rick Haas, MD, PhD (he/him/his) – The Netherlands Cancer Institute

  Co-Author: Michiel A.J van de Sande, Prof, MD (he/him/his) – Princess Maxima Center for Pediatric Oncology

  Co-Author: Kathleen Kane, PhD (she/her/hers) – Bone Cancer Research Trust

  Co-Author: Claudia Valverde, MD – Vall D’Hebron University Hospital

  Co-Author: Carlo M. Cicala, MD – Vall d'Hebron Institute of Oncology

  Co-Author: Tom I. Bootsma, MSc – NKI - AVL

  Co-Author: Herbert Ho Fung Loong, MBBS(HK), PDipMDPath(HK), MRCP(UK), FRCP Edin, FHKCP, FHKAM(Medicine) (he/him/his) – The Chinese University of Hong Kong

  Co-Author: Urška Košir, PhD (she/her/hers) – Oxford University

  Co-Author: Robin L. Jones, BSc, MB BS, MRCP, MD – Sarcoma Unit, The Royal Marsden NHS Foundation Trust and Institute of Cancer Research

  Co-Author: Lena Fauske, PhD – Norwegian Radium Hospital

  Co-Author: Øyvind Sverre Bruland, Prof, MD – Norwegian Radium Hospital, Oslo, Norway

  Co-Author: Samer Saleh, MD – King Hussein Cancer Center

  Co-Author: Deborah van de Wal, MD – Netherlands Cancer Institute/ Antoni van Leeuwenhoek

  Co-Author: Stijn JC Van der burg, MD (he/him/his) – Netherlands Cancer Institute/ Antoni van Leeuwenhoek

  Co-Author: Emily Iris Holthuis, MSc (she/her/hers) – Netherlands Cancer Institute - Antoni van Leeuwenhoek

  Author: Winette T. van der Graaf, Prof. Dr. – Netherlands Cancer Institute/ Antoni van Leeuwenhoek
• 9:00 AM – 10:00 AM  

  REFERENCE SYSTEM OPTIMIZATION, INITIAL ANALYSES OF THE IMPLEMENTATION OF A PROVINCIAL SARCOMA NETWORK
  

  Author: Sophie Mottard, Dr (she/her/hers) – CIUSSS Est-de-l'Île-de-Montréal

  Co-Author: Georges Basile, Dr – University of Montreal

  Co-Author: Hugo Saint-Yves, M.Sc (he/him/his) – CIUSSS Est-de-l'Île-de-Montréal

  Co-Author: Sarah Quevillon, n/a – CIUSSS Est-de-l'Île-de-Montréal

  Co-Author: Alexandra Auger (she/her/hers) – CIUSSS Est-de-l'Île-de-Montréal

  Co-Author: Isabelle Drapeau, Dr – CIUSSS Est-de-l'Île-de-Montréal

  Co-Author: Marie-Josée Berthiaume, Dr (she/her/hers) – CIUSSS Est-de-l'Île-de-Montréal

  Co-Author: Josee Doyon, Dr – CIUSSS Est-de-l'Île-de-Montréal

  Co-Author: Marc Isler, Dr (he/him/his) – CIUSSS Est-de-l'Île-de-Montréal

  Co-Author: Jonathan Noujaim, MD (he/him/his) – Hôpital Maisonneuve-Rosemont and McGill University Health Center

  Co-Author: Janie Barry, MSc (she/her/hers) – CIUSSS Est-de-l'Île-de-Montréal