Patient representative/Ambassador Chordoma Foundation
Patientenplatform Sarcomen/Chordoma Foundation, Netherlands
Since 2016, Caroline has been a patient advocate in the Netherlands for bone sarcomas, specifically chordoma. In this capacity, she is involved in the Chordoma Foundation as an ambassador and member of the community advisory board, and in the Dutch Patiëntenplatform Sarcomen as coordinator bone sarcoma and coordinator organization of expertise and care.
Her goal is to achieve synergy through cooperation: “Bone sarcomas need progress. The practical question where patients can find adequate expertise is as important as the academic search for better treatment options”.
In addition to her volunteer activities, she is an entrepreneur with a focus on sustainability. Through her professional background, Caroline has an extensive network across Europe.
